Parents rarely have a normal lifestyle when
their child is in the hospital. They sleep in chairs in
their child's room or on sofas in the waiting room. They
clean up and change clothes in hospital restrooms. Parents
can't sleep and lose their appetite. Lack of food and sleep
can cause more stress.
Here are some ideas to help you cope with
the stress of having a seriously ill child and deal with
other family members.
- Keep a
routine.
When your child is in the hospital, your
routines are changed. Try to stick with a normal
schedule as much as possible. Other family members need
to go on with their lives. Children may want to and
should be allowed to participate in school and other
normal activities. These activities help children cope
with stress. A few laps around a go-cart track, for
example, can be a great stress reliever for the kids as
well as the parents, uncles, or grandparents who go with
them.
- Keep
physically fit.
Several studies suggest that physical
exercise can help prevent or reduce depression. Get some
exercise by taking walks. Exercise will also help you
sleep and improve your appetite. The combination of
exercise, sleep, and eating can help lower stress
levels.
- Don't forget
siblings.
Talk briefly and honestly with your
other children. Keep the lines of communication open.
Let them know you are willing to talk or answer
questions. Help them understand what is happening, and
let them know that it is hard for everyone. Rather than
sitting them down once for a long talk, pay attention to
how and when your children want to talk. There are
support groups in many cities for children with
seriously ill siblings.
Siblings may feel guilty, jealous, and
anxious. They may say they are "glad he is sick." Don't
be afraid to let your child know that their words and
behavior are out of line. You may not feel like setting
limits or disciplining your children while you have a
child in the hospital. However, sticking to rules helps
restore a normal life and limit behavioral problems. For
example, you may let children sleep with you because you
don't feel like arguing with them. Remember, once a
habit like this is started, it is hard to break.
- Parents under
stress need support.
There are many things parents need when
they have a child in the hospital. There are probably
many things left undone at home. Take people up on
offers to bring a meal, clean the house, or help take
care of other children. Many people say "tell me how I
can help", but many parents don't feel comfortable
asking for help. It's a better idea to make specific
offers such as "What night can I bring over dinner?"
Visiting the parents and child in the hospital can also
be of comfort. Remember that saying the right thing
isn't necessary. Simply being there to listen or hold a
hand can be very comforting.
Unfortunately, many families will face a child's
hospitalization. It is normal to be tired, lack energy, or
feel down in the dumps. It is also normal to feel angry and
frustrated. It helps to keep a normal schedule as much as
possible, get some exercise, spend time with your other
children, and get comfort and support from family and
friends. Support groups can also be helpful. Counseling with
a mental health professional or clergy person can make a
difference.